It’s been a week and three days since the awful hospital experience started. Over the last couple of days there have been definite signs of improvement.
My brother and sister have been taking turns staying at my parents’ house each night just in case something happened.
Today, my mother and my father both agreed that they don’t really need anyone to stay over tonight. Oh, what a huge relief. We’ll still keep our phones on just in case they need us in the night, but this is a huge change for the better.
I’m really happy.
My mother had a physical therapy appointment today and an occupational therapy appointment. It was the first of each. They both made some suggestions on things we could do to make things easier on her. Good. More important, the PT is going to come by twice a week. We won’t know which days until the last minute, which seems odd, but it’s happening. There’s no way that can’t help.
They are going to work on some of her pain spots, back and legs. Her hip was diagnosed as bursitis while she was in the hospital. She’s supposed to be getting some treatment for that too, but we don’t have an appointment yet.
Oh, and did I mention that today is my parents’ 53 wedding anniversary?
Progress. Still about a million miles to go though. Keep your fingers crossed.
My sister and brother have been spending as much time as possible with my mother over the last seven days. They have experienced the full force of her behavioral changes directly. Due to quarantining, I have not been there. I’ve only been able to pitch in with a little bit of housework at my parents house while everyone else was at the hospital.
I got a tiny taste of it today. My father called me. He said my mother wanted to talk to me and he asked me if I remembered the Boy Scout Motto. I did… Be Prepared.
She said she wanted to see me but understood why I couldn’t come over. I was very thankful for that. She also said she didn’t know what was wrong with her. I said we were working to figure it out and the medication would help. She was on the verge of tears the whole time.
Yeah, that sucked. Hard. My thanks and appreciation toward my brother and sister cannot be overstated. They are dealing with it all. My father too. He’s been dealing with everything for years.
I feel so useless. It’s necessary, but still… damn it.
I just got the low down on my mother’s overnight issues. It sounded about normal… or normal for the current situation. She just took her 8:00am pain meds. Here’s hoping for a better day. Less pain, less confusion. Fingers crossed, people.
My sister spent the day at my parents house today. Sounds like my mother stayed busy for most of the day and that helped with her state of mind. My sister also stayed busy which also helped with her state of mind.
We had a nursing service give a consult. They may have some services we can make use of. I’m sure they will be very helpful. Also have appointments with her GP and with the Oncologist and the second round of chemo is still on schedule as of today. We’ll also be talking to some physical therapy folks.
Lots of people who will hopefully make things better for my mother in the short term. I am thankful for all of them and my fingers, toes, and eyes are crossed for good luck.
My mother went home from the hospital yesterday and last night may have been the worst night of the whole ordeal. The infection has her so scrambled that she didn’t believe she was home. She thought we were lying to her. My sister spent the night at my parents house and filled us all in this morning. It was bad.
Please please please let the antibiotics she’s on now clear this up. This is awful.
My mother is home.
That hurricane wind-like sound you just heard was my sigh of relief.
Today was another long day. My mother is still in the hospital and she’s still not handling it well, but she was much better than yesterday. They are trying to figure out her back pain. They found the UTI that was the source of most of her current problems. The also found bursitis in her hip. She had an MRI on her back tonight. No word on the results yet.
Still no word on when she can leave. We were hoping for today but no dice. At least one more day.
Tuesday night’s sleep was kinda awful. My sleep watch app said that I was in “restful sleep” for only half of the time. When I woke up it was like I hadn’t slept at all. It was a bad night.
Last night I went to bed early and then broke one of my quarantine rules.
The rule is, every work day I will be out of bed, showered, and ready to start my work day at the same time I would need to be ready if I had to make the long drive to the office. The goal started out at 7:30. It’s kind of floated up to 7:40 more recently. Today, I was asleep until almost 7:00. Way, way later than normal. Sleep watch said I was asleep for 8:20, and in restful sleep for six hours.
Over eight hours of sleep. It’s amazing. I didn’t think that was possible here in the 21st century. The water tank on my CPAP machine was full when I went to sleep and it was almost bone dry when I woke up. That’s a lot of CPAP run time!
All day yesterday I felt run down and beat up and a little sick. Today I feel a ton better, but my nose is still a little stuffy. It doesn’t feel like allergies. It also doesn’t fit any of the COVID-19 symptoms, so don’t even go there. I think a little bad sleep left me open to a little spring head cold.
Early to bed again tonight? I hope so. It’s helping so far.
When I woke up this morning I had a “did that happen?” moment. It had to do with my CPAP machine.
I’ve been using the machine for about a year now. When I first started I felt like I was remembering dreams more than I ever had before. Maybe once a week or so I would remember a dream after I woke up. After a couple of months that stopped.
This morning when I woke up I remembered something happening during the night, but I couldn’t figure out if it actually happened or if it was a dream.
What was it that I remembered?
Into my CPAP mask.
But did it happen? I couldn’t tell. If it did happen it was a first for me. There have been a couple of times when I sneezed but just managed to get the mask off in time. In this case I must have woke up, sneezed, and immediately fell back to sleep. Either that or it was a dream.
I woke up, got out of bed, dragged a comb across my head, and then checked the mask.
Oh yeah… it was not a dream.
I slept with a mask covered in sneeze snot.